EDS Blog Challenge Day 5 How I Adapted to my New Diagnosis
It took a little while to adapt to all my diagnoses in
general, it’s been a rough couple of years. But my EDS diagnosis has been
really freeing I suppose, because it explains so many of my symptoms and my
other illnesses. My doctors no longer sit and wonder how I have so many rare
illnesses because almost all of them are tied back to my EDS.
I have also learned to not expect as much from myself as I
used to before my health went downhill. Everything is a battle, but I’ve
learned to choose them wisely and just do what I can and try again the next
day. I’ve also learned that braces and splints help me be in less pain,
sometimes I get stared at for wearing six at one time but that’s just the way I
have to live.
I’ve learned to become an advocate for myself; I challenge
doctors and make them think. No concept of my care has ever been simple and I’m
not letting doctors pass off any of my diagnoses or symptoms as nothing. Me
constantly badgering my doctors has lead to diagnoses and surgeries that have improved
my quality of life.
And because of my diagnoses I started blogging to document
my life with chronic illness. I want to inform others, whether they’re sick
themselves or if they’re a caregiver. I feel like I’ve given you guys a wide
variety of information about my diagnoses and what I had to go through to get
them. I’m hoping that I’ve helped at least one person throughout my time
blogging. My main goal has been to help and teach others no matter what I have
to do to help.
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