Today is May 12th, which means it’s Fibromyalgia and Chronic Fatigue Syndrome Awareness Day! So I thought I would talk about what I think is a give and take
relationship between Fibromyalgia and my life.
Fibromyalgia has cost me a lot in my life; I couldn’t keep
up with my friends when they wanted to do things. Like if we went to the mall I
would be rolling along in a wheelchair but they’d suddenly act like I was
invisible. And I can’t do spontaneous like people my age normally can, it often
left me feeling really alone.
As I got sicker my supposed friends left one by one until I
was pretty much alone and isolated, it really sucked. Though I wasn’t
completely alone I suppose because I had my blog to work on, and everyone knows
how serious I am about my blog. My blog is my life or like a baby to me and
with my blog I’m not alone because I have thousands of people reading my blog.
As my Fibromyalgia got worse and I became basically home
bound because of it, it felt like my world got a little smaller everyday.
Though I still felt like I should share my Fibromyalgia journey with others
because there might be people like me who have gone through similar things and
don’t understand what’s happening to them. That was mainly because my
fibromyalgia actually became apparent after I fell while ice-skating and broke
my kneecap. To me that seemed like an odd trigger and honestly it still sounds
kinda weird. Then my Fibromyalgia was made worse after I was in a car accident.
Eventually I decided to join some blogging groups and
through that I have met many amazing people who love and support me. They are
my fellow Fibromyalgia warriors and I’m also happy to call them my friends.
What’s really happened here is my Fibromyalgia has taken
away a lot of things like people I once cared about, things I can do, my
energy. But I suppose if the people I once called my friends were actually my
friends they might have stuck by me or at least asked how I was from time to
time but they didn’t. So really my Fibromyalgia kind of showed me the true
nature of the people around, showed me who was genuine, though that turned out
to be pretty much no one. Though I do give props to my cousin who’s stuck by me
through thick and thin.
As time went on I had one whole friend to my name, but I got
tired of being alone all the time so I started joining blogging groups.
Eventually I became friends with people who had Fibro and other chronic
illnesses like me. Really this is the first time I’ve ever felt like I really
belonged somewhere, and having people who stuck by me no matter what will
always be like a breath of fresh air. In a way I’m thankful for my Fibro
because it’s taught me about people and I’ve cut a lot of the bad out of my
So think of it like this, Fibro has taken a lot out of our
lives but if you look hard enough you can seen where it’s given us some of the
best parts of our lives. I’m thankful for all the friends I’ve made. Life can
also be really hard and frustrating but at the end of the day as I see it I
have friends who I can lean of and give me tremendous support. In turn I can
also help them to the best of my ability.
Fibromyalgia takes a lot away but it gives something in
return. I think that this is my way of accepting the hand I've been dealt even though It's been hard road to walk on.
I also suffer from Chronic Fatigue Syndrome, it's a pretty debilitating illness that also leaves me in bed. Often I don't have energy to do things, though there are days where I push myself really hard to function but it does have it's consequences.
Chronic Fatigue and Fibromyalgia together kind of make you feel like you have some sort of strange flu that will never go away. But just as Fibro has taken away things from my life, it has also given me friends with similar illnesses. Meeting and talking to people with similar illnesses it's almost magical in a way because it's someone who understands you completely. And won't judge you if you haven't gotten out of your pj's in days.
In the end, I want to encourage you guys who haven't joined some sort of online chronic illness group to find one and become a part of it. My friends live thousands of miles away from me or entirely different countries but we make it work. My friends are precious to me they keep me strong and I'm happy I was able to gain something good in my life despite being sick.
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